Celebrating and supporting children with rare conditions and their families
Join us in building community and breaking barriers for marginalised children.
Seeing, accepting and celebrating extraordinary children
There are over 1.2 million people in the Netherlands living with a rare disease. At least 75% of those cases are diagnosed in pregnancy or childhood. We support families caring for a child that lives with a rare disease and/or has intensive care needs. We strive to improve the experience of these families in this often difficult and isolating journey in making decisions regarding the health, education, and long-term care of their child in the Netherlands.
Supporting parents caring for children with intensive needs
Discover our upcoming events and activities, offering insights into avenues to connect with our community and engage in impactful experiences.
Parent Support Group – in-person or online
Join us for our once a month meet-up supporting parents and carers with children with intensive and complex needs. Be part of a community where you can get information and be seen and heard. You are not alone.
Transforming Lives with Compassionate Support
Reach Out to Us for Support and Information.
