
Dear friends and community, As I look back on this past year, I feel deeply grateful for the families, volunteers, partners, and supporters who make A Different Story what it is. Every conversation shared, every moment of connection created, and every family supported reminds me why this work matters so much. Together, we have built…

An interview with Schouders highlighting our parent platform and support group When your child needs extra care, parenting often feels like a competitive sport: intense, emotional, and sometimes lonely. Sarah Rose LaPham knows this better than anyone. She’s the mother of a son with a rare condition and the director of A Different Story, a…

Last Zondag was a day to remember for our Stronger Together project. We kicked off with an enthusiastic group of three participants. What united them was not only the same school, but also the unique specialties and limitations that each brings with them – and which we transform into strength together! Autumn in the Forest:…

When we think about what it might take to raise and care for a child living with a disability (physical and/or cognitive) we often think mainly about the physical and time-consuming act of parenting. We think about the specific needs around their condition, specialised medical care, different therapies, special education, long-term care, etc. Yet most…
FOR IMMEDIATE RELEASE17.02.2025 There are over 1.2 million people in the Netherlands living with a rare disease and at least 75% of those cases are diagnosed in pregnancy or childhood.[1] Therefore, we know that the journey from diagnosis to care in navigating a rare disease predominately impacts young families. With this journey often comes a…